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In a Meeting

Advisory Boards

Community & Clinical Advisory Boards

The Community and Clinical Advisory Boards are crucial in developing the MSIN. The primary purpose of the boards is to incorporate the perspectives, experiences, and preferences of individuals living with MS into the design, implementation, and evaluation of clinical research and healthcare initiatives. To achieve this, the boards are comprised of a wide variety of members who each bring their own expertise and experience. These members include people living with MS, care partners, clinicians, advocates, and subject matter experts to ensure that MSIN leads to better-informed and more relevant research and healthcare solutions. 

Focus Areas

The Community and Clinical Advisory Boards are comprised of individuals who offer expertise in the following areas: 

Patient Perspective 

  • Patient Experience: Advising on ways to improve patient experience and satisfaction with healthcare services or products. 

  • Patient-Centered Care: Ensuring that the organization's strategies and decisions prioritize patient needs and preferences. 

Clinical Expertise 

  • Medical Insight: Providing clinical insights and expertise to guide decision-making processes. 

  • Best Practices: Offering recommendations on implementing best practices in patient care, treatment protocols, and healthcare delivery. 

Care and Service Development 

  • Innovation: Contributing to the development and improvement of healthcare practices, services, or technologies. 

  • Usability: Offering input on the usability and effectiveness of healthcare solutions from both patient and clinical perspectives. 

Regulatory Compliance 

  • Compliance and Quality Assurance: Advising on regulatory compliance and quality assurance to ensure that healthcare services or products meet industry standards and regulations. 

Strategic Planning 

  • Long-Term Strategy: Assisting in the development of long-term strategies and goals for MSIN. 

  • Risk Mitigation: Identifying and addressing potential risks or challenges in the healthcare landscape. 

Policy Advocacy 

  • Advocacy: Advocating for policies that promote patient-centered care, improved healthcare access, and better health outcomes. 

Research and Development 

  • Clinical Research: Providing insights into potential areas for clinical research and supporting research initiatives. 

Ethical Considerations 

  • Ethical Decision-Making: Contributing to ethical decision-making processes, particularly in situations involving patient care, research, or policy development. 

Communication and Education 

  • Communication Strategies: Providing input on communication strategies to effectively convey information to patients, healthcare providers, and the public. 

  • Patient Education: Participating in the development of educational materials for patients and the general public. 

Feedback Mechanism 

  • Feedback Loops: Establishing mechanisms for ongoing feedback from both patients and clinicians to continuously improve services, products, and overall healthcare delivery. 

 

MSIN is always looking for ways to enhance our scope and our impact. If you are interested in joining one of our advisory boards, please contact Alexis Kline at AKline@mymsaa.org.  

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