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1. How have you seen the voices of people living with MS shape the way research and care projects are designed and carried out through MSIN?
“People with MS are included from the very beginning. That changes everything, from the questions we ask to focusing on what truly matters in everyday life.”
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2. How does your work with MSIN connect to your commitment to diversity in MS research, and what impact do you hope it will have?
“MSIN gives me the chance to push for equity from the start. The goal is simple: research that recognizes and represents all of us.”
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3. What opportunities do you see for tools like technology or data to make MSIN more inclusive and effective?
“Technology can help, but only if it first listens to people. MSIN has the chance to create tools that reflect real life, not just what systems track.”
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4. What else would you like to share that would be valuable for the MSAA community?
“We need to start with people’s lived experiences, not just what systems are used to. That is how we change the future, and MSAA has the reach to make it happen.”
Anita Williams has long been a powerful voice for people living with multiple sclerosis, ensuring that real experiences, and not just data, determine how care and research evolve. As a dedicated patient advocate and member of the Multiple Sclerosis Implementation Network® (MSIN®) Steering Oversight Committee (SOC), she helps shape projects that reflect the full diversity of the MS community. Her focus is on equity, inclusion, and keeping lived experience at the heart of every discussion.​
Spotlight: Anita Williams - Centering Real Voices in MS Research
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We recently had the opportunity to speak with Anita about what it means to bring true representation into MS research and how MSIN is working to make that vision a reality.
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