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SXSW COMMUNITY VOTING
Healthcare Innovation Has Some Serious Missing Links
Healthcare keeps solving the wrong problem. This conversation examines one of healthcare innovation’s most important missing links: authentic patient partnership.
MSIN is putting that idea into practice.
The Multiple Sclerosis Implementation Network brings people living with MS, clinicians, researchers, and partners together to help shape research around what matters most to people with MS.
Community voting open through August 23rd
THE MISSING LINK
Research with people, not just about them.
Too often, patients are brought into healthcare innovation after the biggest decisions have already been made.
MSIN is working to change that by bringing people living with MS, clinicians, researchers and partners together to shape research around what matters to people with MS.
THE BIGGER QUESTION
What would healthcare innovation look like if authentic patient partnership were part of the infrastructure, not an afterthought?
THE CONVERSATION WE WANT TO BRING TO SXSW
Patient partnership shouldn't be the last step.
This conversation looks at what happens when lived experience moves from feedback at the end of the process to leadership throughout it.
✓ Why traditional patient engagement often falls short
✓ What changes when lived experience helps guide decisions
✓ How MSIN is testing a different approach
✓ What healthcare innovators can learn from it
WHO'S AT THE TABLE
Different perspectives. Shared purpose.
The conversation brings together professional expertise and lived experience to explore what authentic partnership can actually look like.
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THIS ISN'T THEORETICAL
MSIN is already putting partnership into practice.
The Multiple Sclerosis Implementation Network is a national research network designed to connect research, clinical care and the experiences of people living with MS.
2000+
People Enrolled
20
MS Clinical Sites
National
Research Network
PwMS
In Leadership
MSIN AS A FRAMEWORK
The Multiple Sclerosis Implementation Network is a patient-centric research and learning network led by the Multiple Sclerosis Association of America. It brings together people living with MS, patient advocates, industry, clinicians, researchers, and academia to improve MS research and care.
MSIN’s governance model gives people living with MS a formal role in establishing priorities and making decisions—not simply an opportunity to provide feedback. Using MSIN as a case study, the panel will share lessons and best practices for embedding patient engagement across governance, research, data sharing, communication, and evaluation.
The discussion will also examine how this framework can be applied beyond multiple sclerosis to help organizations build healthcare solutions with patients rather than simply for them.
BUILT WITH LIVED EXPERIENCE
People living with MS aren't just participants.
Lived experience helps shape MSIN's priorities, research and direction from the beginning.
MSIN is working to change that by bringing people living with MS, clinicians, researchers and partners together to shape research around what matters to people with MS.